Episode 12: Surviving endometriosis

Episode 12: Surviving endometriosis

Tune in to hear Sachiko's insightful and heartfelt story, and learn more about the ongoing efforts to improve the lives of those affected by endometriosis in Japan.

In this episode, we delve into the complex and often misunderstood world of endometriosis in Japan with our guest, Sachiko Ishikawa. Sachiko, who works in translation and localization in Tokyo, shares her personal journey with endometriosis, comparing her experiences in Japan and Spain.

Despite the differences in medical systems, Sachiko faced similar challenges in both countries, including dismissiveness from healthcare professionals and long waits for diagnosis.

Sachiko's story highlights the struggles many face in getting a proper diagnosis and treatment for endometriosis. She recounts her painful flare-ups, the dismissive attitudes she encountered, and the turning point when her condition was taken seriously only after she and her husband struggled to conceive. Sachiko provides a detailed account of her medical journey, including multiple procedures and treatments, and the eventual diagnosis of endometriosis.

We also discuss the current state of endometriosis awareness and treatment in Japan.

While there have been some advances, such as the discovery of a specific bacteria linked to endometriosis by researchers at Nagoya University, there is still a long way to go. There's a sure need for better education, belief in patients' experiences, and the importance of breaking the taboo surrounding periods.

Join us as we explore what Japan does well and what it can improve in terms of endometriosis diagnosis, medicine, and public awareness. We also touch on the cultural challenges and the impact of work habits on those suffering from endometriosis. Despite the hurdles, awareness is rising, and conversations are happening, as evidenced by the recent Annual Meeting of the Japanese Society for Endometriosis.

A few resources:

Japan Endometriosis Association (JEMA)

Ground breaking researches by Ayako Nishimoto-Kakiuchi https://pubmed.ncbi.nlm.nih.gov/36812343/

Blossom project

https://www.instagram.com/blossomtheproject/p/DGwqFESPzZq/

http://endometriosis.gr.jp/index_en.html

#子宮内膜症

Art cover by Doria Kriouche

https://www.instagram.com/doria.kriouche/?hl=en

Episode edit by Mai Nguyen

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