Advocacy in rare disease: Closing the funding gap

Public–private partnerships also play a key role in closing the
funding gap. They can facilitate knowledge-sharing, resource-pooling,
and joint efforts toward finding effective treatments and cures.
Advocating for international cooperation is another key strategy.
Establishing global networks and collaborations that include venture
capitalists and banks can facilitate the sharing of research findings,
best practices, and funding opportunities. International funding bodies
and foundations can also prioritize rare disease research and encourage
collaboration across borders.

In this panel discussion, participants will:

• Learn how closing the funding gap in rare diseases requires a multi-faceted approach
• Hear strategies for increasing government funding, collaboration among stakeholders, and international cooperation
• Get information on how rare disease research can benefit not only
  those with rare diseases and their communities, but the wider world as
  well.

More info in our website : https://www.fondation-ipsen.org/webinar/webinar-advocacy-in-rare-disease-closing-the-funding-gap/

This podcast was adapted from a webinar co-organized by AAAS Science Magazine and Fondation Ipsen.

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